Wednesday, January 26, 2011

Update on Our Precious Emma :) I know... I know... it has been a while!!!

Check out this SMILE!!!

Talking to Mommy!

Peek-a-Boo!

Cutie!
Well hello to everyone!  I finally get a chance to sit down and type an update again.  I know it has been a while since we last updated, and so I will try to fill everyone in on what is going on with Ms. Emma.  Let's start by saying Praise God!  Emma is getting bigger, and by bigger I mean chubby.  Chubby enough to be over 5 kg which is ~11 lbs!!!!!  Such a blessing to see her getting bigger and stronger.  We are still on the ventilator but with each pound she puts on she gets stronger and has a better chance of coming off of the ventilator.  She is developing quite a little personality as well.  She is getting older and we have not changed her dose on her sedation/pain meds in a while which means she will outgrow them.  Knowing this, we understand that she can become more irritable at times.  She knows what she does and doesn't like even more than she did several weeks/months ago.  She knows she doesn't like any tube that goes into her body.  She actually will reach up and try to pull it out, little stinker.  We tell her that they are good for her right now and that she will lose them soon enough, but she just does not want to listen! ;-)  So, as you can imagine, she is becoming very stubborn and likes to get her way!  (Don't tell, but that is just like her mother! :-P)  But, besides being irritated at times, she can be rather fun and happy as well!  She loves watching her mobile, with birds on it, spin round and round.  She often will smile and even laugh at it!!!! :-)  So, she can be very fun!!!

As of now, however, our little princess has caught herself some sort of bug.  They just did a culture of her ET tube and it came back growing some bacteria that she has not had before.  So, we started her on antibiotics which should take care of it in just a few days.  Being sick makes her less happy, of course, which is absolutely no fun to watch.  :(  But, hopefully we will get her well and back to her normal self soon.

We are still waiting on a heart.  The waiting game is hard.  We want her better but realize the sad reality of how we get her there.  We know God has a plan for all of this and so we leave it up to Him as to when that will happen.  Thank you all for the thoughts and prayers!  I want to assure you that they are working!

Also, Sarah, Emma, and I want to say a special thank you for all of the people that are holding fundraisers/events for Emma.  You all are truly amazing people and a true blessing from God.  As I type this, it brings tears to my eyes just thinking about the out-pour of support from all of you!  We appreciate everything you all do and are very humbled by how many people are coming out to help our family.  It makes us want to help those around us, as you all of helped us.  At times we question why in the world we were chosen to go through this, but we know that God has given our family the strength and courage to go through this and has blessed us with people like you to continue to edify us through this process.  So again, we all of my heart, thank you.

There have been some people requesting to get in contact with us other than on Facebook (where amazingly no matter how much information you give us, you still can't locate that person) or through this blog.  So we have set up an email account where you will be able to easily contact us.  The email address is as follows:  hopeforemmasheart@gmail.com.  Feel free to email us!

As always, thank you all for the support and edification that you all provide to our family!  And we give, as we know ya'll do to, thanks to God.  He is truly an amazing God!

God is good, all the time!  And all the time, God is good!

Daddy Scott

12 comments:

  1. That stinks about the infection, but I am sure it will clear up soon. I am keeping all of you in my thoughts and prayers for the perfect heart.

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  2. Thank you for updating. I know you have many more important things to attend than sitting in front of a computer and typing a message, but it truly is a joy to hear news of Emma.

    Praise God for the 'baby steps' that are being made in Emma's life. As you say, God is in control and His timing is very different from ours. We want it NOW---God says, "Wait for Me."

    I continue to pray for you all.

    Joy/Chandler, OK

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  3. What? No pictures? :( We all want to see pictures of cute little Emmas face!!! :)

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  4. Such wonderful news to hear! So glad that she is gaining the weight she needs. Keeping you all in our prayers on a daily bases. Give that little girl a hug from this Oklahoma mom. :)

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  5. YEA!!!!! So glad to hear from you all and get that update. How wonderful it is to get some news that she has gained weight. Sounds like she just has her own little personality going there. So glad you are having fun with her. Bless that sweet little precious baby. God be with all of you in the coming days and months ahead. One of these days she will have her new whole heart and that will be such a blessing. We are praying hard for her to get a heart very soon.

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  6. I'm friends with Stacy Stewart on facebook and she told me the story of Emma and the blog site. Thanks for the update. She is in my prayers and thoughts and I've asked a bunch of people to pray for her. It breaks my heart that you all are going through this. Thanks again for the update.

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  7. Praying for antibiotics to work really, really fast. Also, for Sarah to get over her sinus infection. Get well soon Emma & Sarah.

    Love you folks!
    Karla

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  8. Thank you for the update. I check daily to see if there is any news about Emma. Praise the Lord for the 'baby steps' of progress. God is still in control and He will continue to guide you through this journey. I contintue to pray that God's will be done in your lives, in His time.

    Joy/Chandler, OK

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  9. LOVE the pictures!

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  10. Keeping the prayers going! She is really growing. Praying for your strength for each day. Praying as God leads you and fulfills His plans. Praying for God's peace to flow down on you.
    Angie-Ada

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  11. BEAUTIFUL BABY!!!!!!!!!!!!!! She is soooooooooo sweet. Love the last pics.

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  12. i to was born with a heart deffect. i had a stroke when i was 15 months old. the doctors didnt have much hope but my family wouldnt give up.little emma is so lucky to have so many ppl who luv her and are fighting for her. i am now a mother to three beautiful children and married to a wonderful husband. god is trully wonderfull and emma is an angel put those together nothing is impossible. i send all my prayers and love to little emma

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