tag:blogger.com,1999:blog-4843526988083008045.post7671897551954650798..comments2023-06-03T05:12:10.225-07:00Comments on Hope for Emma's Heart: The New Plan............For Now Anyways!Sarah Stewarthttp://www.blogger.com/profile/16236036033792150049noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4843526988083008045.post-86243676506943313882011-09-08T19:23:09.128-07:002011-09-08T19:23:09.128-07:00Hey Emma,
Not sure if I ever bumped into you here...Hey Emma, <br />Not sure if I ever bumped into you here at Children's, I just ran across your blog with the other heart moms I'm currently waiting and have been waiting for 5 months now for my daughter to get her Glenn procedure. Dr.Forbess and Dr.Gullesarian did her Norwood back in April. I will be praying for Mrs.Emma, maybe one day we will cross paths up here! Haha.Courtneyhttps://www.blogger.com/profile/03317070812268238575noreply@blogger.comtag:blogger.com,1999:blog-4843526988083008045.post-35761994656728415242011-09-07T09:49:50.502-07:002011-09-07T09:49:50.502-07:00We will be praying for Emma and your family. I al...We will be praying for Emma and your family. I also know what it's like to have a little complicated HLHS daughter. My wonderful Raygen was born on 3/23/11 and she had her Norwood 6 days later. During the Norwood her vocal cords were paraylized and she had to have a trach at 2 months. We spent 3 months at Childrens before we were able to bring Raygen home and then have been back for 3 days for a cold. We are waiting on her heart cath date to determine when her Glenn will be now. We did find out that the right side of her vocal cords are working normal so she may get rid of the trach but before or after the glenn is the question. From one heart mom to another know that you and your family are not alone and we will be praying. Your daughter is so pretty. You can see Raygen at www.praying4raygen@blogspot.com.<br />God Bless.<br />ErinAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4843526988083008045.post-48802876834929787182011-09-06T18:45:37.045-07:002011-09-06T18:45:37.045-07:00Emma,
You are in my prayers all the time. You h...Emma, <br /><br />You are in my prayers all the time. You have been through so much, but I believe God has a good plan for your life. And I look forward to the day that you will be giving your own testimony of how God healed you. And what a testimony that will be. I am also adding Simon and Micah to my prayer list. <br />Hugs<br /><br />RoseAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4843526988083008045.post-45484395835436446932011-09-02T18:58:01.117-07:002011-09-02T18:58:01.117-07:00I Love your idea about Hope for Emmas heart. I hav...I Love your idea about Hope for Emmas heart. I have been following your blog from the beginning. See, my sweet baby Micah had HLHS too. All the precious and sweet baby girls and boys are in my prayers. Be looking for a special gift for your baby in the mail closer to the end of the month. I will also send a special care package to you for your organization. Praying you get your goal made. We will be praying for your sweet Emma. LoriAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4843526988083008045.post-13712081782270464072011-09-02T12:31:33.038-07:002011-09-02T12:31:33.038-07:00Sweet Little Warrior Princess, your Nana is prayin...Sweet Little Warrior Princess, your Nana is praying for you to fool the doctors and do really well on the Glenn procedure! We know God is with you to guide the doctors' hands and to encourage them to give their best effort and to "do no harm." And we know that Jesus will stand beside you and hold your pretty little hands. The rest of us will be praying for a successful surgery and a quick recovery. God bless you, precious Emma! How much you are loved by so many!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4843526988083008045.post-37624038233616489922011-09-02T10:50:37.923-07:002011-09-02T10:50:37.923-07:00I have been following your precious Emma's sto...I have been following your precious Emma's story since November. She has grown a lot in spirit and looks since then and she is BEAUTIFUL and STRONG! I will be praying for her over the next few weeks as I know what it is to have a medically complicated child with HLHS. My son Simon is 16 months old and has had his Norwood, a repair (2 days later), his Glenn, a heart attack which caused a significant injury to his brain (5 days after Glenn), and a multiple surgery intervention in May for his g-tube, broncoscopy, ear tubes, and circumcision. He has had more bouts with Acidosis and Chylothorax than I can count and now we are dealing with an AP Collateral Valve. He acquired the nickname "Screwball" from his Cardiac Surgeon by 3 months old since no matter what predictions were put on the table, Simon would ALWAYS go a different route! He was admitted to hospital 12 different times before 15 months. God bless you two for loving your little girl so much! I will be praying!Elizabeth Ridout (absentmomma@yahoo.com)http://www.caringbridge.org/visit/simonridoutnoreply@blogger.com