Tuesday, March 31, 2015

Post Op Update 2

Emma is recovering in the cvicu. We all had a long night. She got back up to the unit around between eleven to midnight. Sarah and I each averaged around 2 to 3 hours of sleep. 

Little rough course when she first got up here but settled out as the night went on. Now we are  just weaning down on multiple inotropic medications and trying to move her more towards extubation. All of her numbers and labs are looking pretty good which are answered prayers. So right now we are just staying the course and making adjustments as needed. Emma is "eating" through pain and sedation meds.  We hate seeing her in so much pain.

We appreciate all the thoughts and prayers as we continue on this journey. God is good, all the time... And all the time,  God is good!

Daddy Scott

Monday, March 30, 2015

Post op 1

Prayer Requests:

1.  Emma is running a fever and had to be placed on a cooling blanket and packed in cold clothes.

2.  Her blood pressure is low and she is requiring quite a bit of volume and inotropic support in the interim.

3. She is not paralyzed so she is trying to remove her breathing tube even though she is not ready and is in pain when her meds wear off.

It will be a busy night keeping her calm and dealing with post op issues. 

Thank you for the continued prayers.

Surgery Update 5

We just spoke to Dr. Baird and everything went well.  He did the bidirectional Glenn, repaired her tricuspid valve, and took the stent out of the LPA.  Her function was already slightly improved and all her numbers look good.  She did have some excess bleeding post op, but Dr. Baird stayed in the OR until it had stopped.  Overall, he was pleased with the procedure.  Now we wait and see how the right ventricle recoups with less volume overload.  

We hope to see her in about an hour or so.  They will keep her sedated and incubated tonight to let her body heal.

Please continue to pray for our sweet girl as the next few days will be hard for her.  Post Glenn tends to bring severe headaches.  

Pray that her heart function will return to normal and her body will accept this new repair.

Pray for the doctors, nurses, and respiratory therapists caring for Emma.

Pray for a smooth evening without much bleeding, pain, rhythm or blood pressure issues.

God is good!  All the time! God is good! 

Surgery Update 4

We were moved out of the surgical waiting room since it closes at 7pm.  We are now waiting in the CVICU waiting room for updates.  The CVICU nurse just informed us that they were finishing up and beginning to close her chest.  It will be awhile before we get to see her, but apparently she is doing well.  Thank you again for the continued prayers.

Surgery Update 3

Emma is in bypass and is doing well.  Now the reconstruction and repair begins.  Please be praying for Dr. Baird and his team as they skillfully and carefully work on my precious girl's heart.

Surgery Update 2

Emma is doing good.  They have all of her lines in and are beginning to make the incision.  We will have another update around 4:00.  Please continue to pray for our sweet girl.

Surgery update 1

Emma just went back for surgery!  The plan is to do the bidirectional Glenn and repair her tricuspid valve.  Prayers for a successful surgery and smooth recovery please.  God is good!  All the time!  God is good!