Saturday, May 21, 2011

An Update on Miss Emma and Future Events

Well hello to everyone!  Just wanted to give a quick update on how Emma is doing and also on some soon to be events in the near future.  Emma is doing amazingly well at home!  This week, Sarah and I took a vacation/work related conference to Las Vegas and Gramma (Sharon) watched after her.  It was very hard leaving her but was good for us.  A special thanks to her and all those that came down to be with them and help take care of Emma.  She did well the days we were gone and greeted us the night we got in with snores as she slept soundly.  The next day, however, was full of smiles as she saw that we were back home.  I got to watch her yesterday while Sarah went to something she had planned, and let me just say, I think that Gramma may have done a little spoiling while we were gone!  ;-)  She is still developing that little personality of hers.  As I was watching her, I turned around for about 5 seconds, and when I had looked back, there she was, with NG tube in hand.  She had decided to completely remove it!  And as I said, "Emma, well now why did you pull that out," she just looked at me and smiled.  Ornery little thing :-)

Well we are about to head in tomorrow to the hospital as we prepare for our cath procedure on Friday.  You may be thinking, "Well why in the world do they need to go in Sunday if the procedure is Friday."  It is only because she is on a medication that they are wanting to ween off before the cath.  This way, it will not make the cath procedure have false reading.  So we go in tomorrow sometime and get settled in for a week (or more) back in the hospital.  Please pray that her cath procedure goes very well on Friday and that we will have some sort of clearer direction for Emma's future plans.

I would like to extend a continued thank you to all of you that continue to pray for Emma and us!  As you can see, those prayers are working!


God is good, all the time.  And all the time, God is good!

Specific Prayer Requests:
1)  Pray for Emma's upcoming cath procedure on Friday.
2)  Pray that the doctors will know which way to go that will be best for Emma.
3)  Pray for all the medical staff that will be taking care of Emma this week.
4)  Continue to keep Sarah and me and our families in your prayers.

Be sure to check out the latest youtube video if I can get it loaded!

Daddy Scott

Tuesday, May 10, 2011

Mother's Day

Wow, what a Mother's Day!  I am so blessed to be the mother of Emma!  Emma has changed my life in so many ways!  Becoming a Mother changes anyone's life, but becoming a mother to a child with a CHD really changes your life.  That moment where you get to hold your baby for the first time happened for me when Emma was 21 days old.  The first time I heard her cry---5 months old.  The first time to pick her up by myself---5 months old. Her coming home outfit---size 6-9 months because she was six months old before she got to leave the hospital.  We start our morning off with a smile and 10 meds!  I have several charts up in the house just to keep track of her meds, ins and outs, PT/OT/ST, doctor appointments, etc.  They have called me in twice to tell me that my daughter is crashing-----However, at the end of it all, she is HERE!  God has given me 7 months with this sweet little girl.  Yes, we have a long ways to go, but we have come so far!


I got to spend Mother's Day with my Mom, Dad, Scott, Emma, My bother, My Sister-in-law, and Coen!  My Wonderful husband wrote me a beautiful poem for Mother's Day that I want to share with you!  Scott is an amazing husband and father and he went out of his way to make me feel special on this day!

Poem by Scott:

I look before me and I see,
Our child's amazing mother, and hey, she is married to me!


She loves our child with all of her heart,
And she has from the very start.

She makes mothering our child a priority in life.
Even though, at times, it is filled with some strife.

She drys up the vomit, and cleans off the poo,
And she turns and says to me, "Well that's just what mother's do!"

She gives our child baths and changes her clothes,
she even uses the electronic sucker to clean out our child's nose.

She cleans he house and even cooks the meals,
I don't tell her this enough, but she's kind of a big deal!

She wahes the dishes, and cleans off the table,
Even when Emma is across the room screaming, and she may not feel able.

She deals with all aspects of our child's care,
Which keeps her so busy she might not be able to fix her hair.

She gets ready the feeds, and preparess the swing,
Puts on Baby Einstein, while in the background the phone begins to ring.

Oh there are so many many more things that I could list out,
That would give you a better idea of what her life as our child's mother is all about.

But one phrase is for sure, one statement that trumps all other,
"I have the best wife, and our child has the best mother!"


Pics from Mother's Day!
















(Having issues with pictures...Will upload soon)







Future Plans:

Emma will go to the hospital on the 22nd to spend a week before her next heart Cath!  The next heart Cath is on the 27th and will look at the current function of her heart.  This will give the doctors an idea of where to go from here!


Prayer Requests:

That Emma will continue to gain weight and grow!
That Emma will be able to stay off of oxygen!
That Emma will stay infection and virus free!
That Emma's Cath will go well and the doctor's will be able to make a good/informed decision for Emma's next step!
That Emma will have a short and uneventful recovery from the Cath!
That Emma will continue to improve with her physical development!
That Scott and I will have the knowledge/patience/strength to take care of Emma!
Please pray for Emma's heart buddies!


God is Good!  All the Time!  God is Good!

Sarah (Emma's Mommy)

Sunday, May 1, 2011

WE ARE HOME!!!

To our Loyal Blog Followers,

I am so sorry that we have not updated the blog in so long.  It has been an extremely busy, yet eventful few weeks.  I would write a lengthy, detailed summary about what has gone on, but instead I will hit the highlights in a list.



Emma was doing SOOOO well that she got to move to the 8th floor!  This is the Cardiac floor you go to, to get ready to go home!   

Emma is not requiring any oxygen support:

Emma is feeding into her stomach with breast milk!  She is also doing bolus feeding!

She had her first Easter and got to spend it with cousin Coen!  She also got to dye eggs and hunt Easter eggs!



Emma got to come HOME (well, our Dallas home)




First car ride!


I pulled my NG out on my car ride home!

Emma will go back at the end of May for a Cath procedure to evaluate her heart again!  The doctors will then decide what the next step in her plan will be!


PLEASE REMEMBER:  Emma still needs to stay INFECTION FREE, so we will not be getting her out much and request that you do not come if you are sick, have been around sick people, etc.  Also, Scott and I are trying to get used to this new lifestyle, so if we do not return phone calls, messages, etc. please know that we are trying our best! 


Prayer Requests:
 That Emma will continue to gain weight and grow!
That Emma will be able to stay off of oxygen!
That Emma will stay infection and virus free!
That Emma's Cath will go well and the doctor's will be able to make a good/informed decision for Emma's next step!
That Emma will have a short and uneventful recovery from the Cath!
That Emma will continue to improve with her physical development!
That Scott and I will have the knowledge/patience/strength to take care of Emma!
Please pray for Emma's heart buddies!


God is Good!  All the Time!  God is Good!

Sarah (Emma's Mommy)