Friday, October 28, 2011

Update

Brief update:  Emma's lungs are filling with fluid and causing ventilatory issues so they tried to put in a pigtail but she has so much scar tissue that it was unsuccessful.  We are trying to control things without surgical chest tube intervention but have that in our back pocket.  We are still fighting for Emma and she is still fighting.  Her heart function looked minimally improved.  Everyone is working really hard for her.  We have an extremely uphill battle and to be honest it is very scary but our God is good and He will carry us through whatever storm comes our way.  We want to thank everyone for prayers and support....it gives us peace at a time when we need it the most
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6 comments:

  1. AnonymousOctober 28, 2011 at 4:54 PM

    Prayers and thoughts for Ms Emma! Fight, Ms Emma, Fight!

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  2. rainyrabbitOctober 28, 2011 at 6:24 PM

    Thank you so much for the update and prayers are continuing to be said! Prayers for calm and peace for the doctors and for you and for little Emma! God bless all of you! Rainy(Oklahoma)

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  3. Krista PhillipsOctober 28, 2011 at 7:51 PM

    Continuing to pray for sweet little Emma!

    -krista, Annabelle's Momma

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  4. Elizabeth RidoutOctober 28, 2011 at 10:14 PM

    I am praying for your sweet Emma! I have been following her story since she was very small. My son Simon(HLHS) also had a decline in his heart function in the last few weeks. His echo yesterday showed that his upper right section of his heart is not really squeezing much at all and our cath that we were planning for late spring is being moved to as soon as they can get him in. He is stable right now but he has never been able to fight the simple cold without being hospitalized and we have two school aged children and a toddler....we have to keep him healthy and stable until they figure out what is causing this problem. At this point they are saying he isn't likely a good candidate for a Fontan procedure. We may be on a fast track to a transplant and this is of course sooo scary...I will put Emma right next to Simon in our prayers tonight. God will take care of our babies, one way or the other! Through it all, God is still GOOD!!!

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  5. janiskiOctober 29, 2011 at 1:20 PM

    Sarah and Scott, I've been following your blog about your sweet Emma since the very beginning. Please know that your whole family is in my prayers as Emma faces this challenge.

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  6. AnonymousOctober 29, 2011 at 2:00 PM

    Praying for a complete turnaround for your precious Emma. Keep the faith!

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