Slow and Steady Wins the Race

Since the last update….

Since we have updated you last, a few major events have occurred!  Emma is extubated.  YAY Emma!  We extubated her to 20 liters of Vapatherm.  This is a lot of oxygen flow in her little nose and she does not necessarily care for it; however, it is necessary at this point to keep her lungs open.  We dealt with intermittent lung collapse shortly following extubation but seem to have that under control right now.  We are lowering her flow be one a day and are currently at 15 liters. 

Emma’s chest tube worked its way out, so she is currently chest tubeless.  We are hoping and praying that we will not have to insert another tube anytime soon. 

Emma is much more like herself again.  She is laughing, playing and ‘talking’ a lot more each day.  She is really finding her voice and ‘ah, ah, ahs’ all of the time.  She is VERY weak from all that has happened to her, so she was not very happy with me yesterday when I asked her to work at sitting up, rolling, etc. 

The plan….

Well, the plan is to get her out of the hospital.  So, in order to do that we must get her off of the vapatherm onto a regular nasal cannula and transition her from IV diuretics to PO (by mouth) diuretics. 

Emma has been a happy baby lately and has really enjoyed having her hands free to play.  Please continue to pray for our little Princess as she continues on this crazy journey.

FRIENDLY REMINDER:

IT’S BACK!!!! VIRAL SEASON THAT IS!  Please remember that anyone who would like to see Emma MUST have their flu shot.  Also, if you are sick (even the sniffles) or have been around someone who is sick, please do not come visit us.  We appreciate the care and concern, but MUST keep Emma safe and germ free. 

Thank you again for the constant prayers, encouragement, and love.  Please say an extra prayer for our heart buddies.  Some of them are really having a hard time and could use the prayers.

Also, A BIG THANK YOU to all of you who donated items for the Hope From Emma’s Heart project.  The packages are put together and are just waiting for a less hectic time to be delivered.  I will write more about them later, but you all went above and beyond to fill them with AMAZING items.  I tried to get thank yous out to everyone who donated, but if you have not received one and donated something please know that your generosity is GREATLY APPRECIATED! 

God is Good!  All the Time!

My finger may be small but I can still wrap my Daddy around it.

Promise me you'll remember: you are braver than you believe, stronger than you seem, and smarter than you think.

You are WORTH IT ALL!

Before I was a Mom, I never held a sleeping baby just because I didn't want to put it down.
I never felt my heart break into a million pieces when I couldn't stop the hurt.
I never knew that something so small could affect my life so much.
I never knew that I could love someone so much.
I never knew I would love being a Mom.
~