Let me begin by saying that we are LOVING having Emma home. She is truly growing and developing every day. She seems to be getting stronger and is wanting to put some weight on her legs finally.
We see the cardiologist once a week to track Emma's labs and x-rays. We are trying to get Emma on a lower diuretic regimen, so we can lower her supplemental potassium and calcium. She has been tolerating these weans and her x-ray has actually continued to look good. Since her x-ray has looked good, we having been working her oxygen down. She can even be OFF oxygen for periods of time! YAY EMMA!
So for the not so good news...
At today's cardiologist appointment, Emma's heart echo showed a minimal decrease in RV (right ventricular) function. Emma's cardiologist was not too concerned since the rest of the echo looked fine, Emma looks so good, and her x-ray is looking good. He is starting her on some Enalepril to hopefully help with her higher blood pressure (which had not been high) which should help with the after load of her heart.
In saying all of this, the echo today is one "snapshot" of her heart, so we will be getting another echo in a couple of weeks to look at her heart again. Obviously, we would like to see her heart function return to its baseline.
We ask for your prayers. Please pray that Emma's heart function will return to normal and that this is one "bump" that we do not have to "go over" again.
God is Good! All the Time!
Please also remember Emma's heart buddies in your prayers. We have several little friends who are having a tough time right now.