So, long night. Sarah and I did not get a lot of sleep and neither did Emma. Emma was just uncomfortable and didn't sleep well. She also had a lot of stuff going on from the care perspective last night that would wake her up and then in turn, us up. Overnight, we also had some electrolyte issues which meant some arrhythmia issues. Nothing severe, but we had to address those as well. So, like I said, long night with little sleep. We were greeted this morning, however, by a smile and some laughs. This was so great for us to see! :) Those though were short lived as she got tired and is now back asleep. Her cath doctor already came by this morning and said she looked great. The doctors in the PICU also have rounded and think we are ready to go to the cardiac floor in preparation to go home in the next day or so. We should be removing the majority of her IV lines today, which no doubt will also make her more comfortable. We have also started back her water through her NG tube and will get to try and feed her today as well. We are also weaning down on her oxygen. She has been on 2L continuous flow and we just went down to 1L. If she handles that well, then we will keep titrating it down to be on room air for discharge. All in all, we are so proud of how she is doing and how she is recovering!
As always, we thank you for all those that are thinking about us and praying
for us! Simply put, prayers work. What an amazing God we serve!
God is good, all the time. And all the time, God is good.
Some prayer requests:
1) Pray for the upcoming decisions that will need to be made regarding
Emma's future surgeries/procedures.
2) Pray that she continues to have a quick recovery.
3) Pray that she tolerates food well as we start feeding her again.
4) A special prayer of thanksgiving for the doctors, nurses, respiratory
therapists, etc. that are taking such amazing care of her.
5) Pray that she continues to do well coming down on oxygen.