Just a Quick Update:
Well, Emma is constantly keeping us on our toes. Many of you saw the video a posted on Facebook the other day of Emma smiling and very happy. Well, yesterday my happy baby turned into a cranky baby. Unfortunately the irritability is getting worse. She has had several desat episodes (where her oxygen levels drop) and they have had to go up on her vent settings. When I left Dallas on Friday to go to Oklahoma, Emma was getting to do pressure support trials on the vent (where the vent does not help her) and she was doing great, sating in the upper 80s and did not look in distress at all. Today, they have upped all of her vent settings and she is slightly retracting when she breathes. One of her blood gases this morning showed that her CO2 level was 97. This is BAD! They have had to give her several doses of sedation meds to get her calm. We have not had to that in several weeks. So, they are running every test possible on her to see what is wrong. Her last x-ray showed more dilation in her stomach and intestines, so they have stopped her feeds for now. She will be getting a chest/kub x-ray every 6 hours. She will also be getting an abdominal and chest ultrasound. They are culturing the secretions in her ET tube (vent), culturing her blood, running labs, and basically testing everything to try and figure out why she does not feel good and why they all of the sudden are having to go up on her vent settings to get the results they are wanting. So, today my baby does not feel good and it breaks my heart to watch her in pain.
We received word on Friday afternoon that we officially got insurance approval to proceed with transplant evaluation. So, on Monday and Tuesday Scott and I will be in meetings all day to answer questions, fill out paper work, and be filled in on what this process entails. We will be very busy. We will update the blog on Wednesday to let you know what we find out.
Specific Prayer Requests:
1. Pray that Emma feels better soon!
2. Pray that Emma will be able to come back to low vent settings.
3. Pray that Emma can tolerate feeds and not have stomach issues.
4. Pray that Emma will be a candidate for a transplant.
5. Pray that Emma will receive a heart that is PERFECT for her.
6. Pray for the family that will make the decision to donate.
7. Pray that Emma has many happy days ahead.
8. Pray for the doctors, nurses, and other staff in charge of her care.
9. Pray that Scott and I will fully trust in God’s plan for Emma.
God is Good! And, we will praise him in this storm!