Update on Our Precious Emma :) I know... I know... it has been a while!!!

Check out this SMILE!!!

Talking to Mommy!

Peek-a-Boo!

Cutie!

Well hello to everyone!  I finally get a chance to sit down and type an update again.  I know it has been a while since we last updated, and so I will try to fill everyone in on what is going on with Ms. Emma.  Let's start by saying Praise God!  Emma is getting bigger, and by bigger I mean chubby.  Chubby enough to be over 5 kg which is ~11 lbs!!!!!  Such a blessing to see her getting bigger and stronger.  We are still on the ventilator but with each pound she puts on she gets stronger and has a better chance of coming off of the ventilator.  She is developing quite a little personality as well.  She is getting older and we have not changed her dose on her sedation/pain meds in a while which means she will outgrow them.  Knowing this, we understand that she can become more irritable at times.  She knows what she does and doesn't like even more than she did several weeks/months ago.  She knows she doesn't like any tube that goes into her body.  She actually will reach up and try to pull it out, little stinker.  We tell her that they are good for her right now and that she will lose them soon enough, but she just does not want to listen! ;-)  So, as you can imagine, she is becoming very stubborn and likes to get her way!  (Don't tell, but that is just like her mother! :-P)  But, besides being irritated at times, she can be rather fun and happy as well!  She loves watching her mobile, with birds on it, spin round and round.  She often will smile and even laugh at it!!!! :-)  So, she can be very fun!!!

As of now, however, our little princess has caught herself some sort of bug.  They just did a culture of her ET tube and it came back growing some bacteria that she has not had before.  So, we started her on antibiotics which should take care of it in just a few days.  Being sick makes her less happy, of course, which is absolutely no fun to watch.  :(  But, hopefully we will get her well and back to her normal self soon.

We are still waiting on a heart.  The waiting game is hard.  We want her better but realize the sad reality of how we get her there.  We know God has a plan for all of this and so we leave it up to Him as to when that will happen.  Thank you all for the thoughts and prayers!  I want to assure you that they are working!

Also, Sarah, Emma, and I want to say a special thank you for all of the people that are holding fundraisers/events for Emma.  You all are truly amazing people and a true blessing from God.  As I type this, it brings tears to my eyes just thinking about the out-pour of support from all of you!  We appreciate everything you all do and are very humbled by how many people are coming out to help our family.  It makes us want to help those around us, as you all of helped us.  At times we question why in the world we were chosen to go through this, but we know that God has given our family the strength and courage to go through this and has blessed us with people like you to continue to edify us through this process.  So again, we all of my heart, thank you.

There have been some people requesting to get in contact with us other than on Facebook (where amazingly no matter how much information you give us, you still can't locate that person) or through this blog.  So we have set up an email account where you will be able to easily contact us.  The email address is as follows:  hopeforemmasheart@gmail.com.  Feel free to email us!

As always, thank you all for the support and edification that you all provide to our family!  And we give, as we know ya'll do to, thanks to God.  He is truly an amazing God!

God is good, all the time!  And all the time, God is good!

Daddy Scott