You know, they always say to cherish every moment that you have. Some even say, "carpe diem," or "seize the day." This journey has taught us many things. And one of the greatest things that it has taught us is to cherish every moment that we have with our sweet princess, Emma. We are reminded about how great it is to have our sweet girl here, and how blessed we are because of that. I say this all to tell you that we recently found out that a nurse in our unit was killed in a motorcycle accident. He was a great person, so kind and friendly. It is amazing how we forget that this life is not something permanent. Even though we are just a family here, its so sad to think about losing him as a nurse, as a friend to us. Our thoughts and prayers go out to his friends, all the nurses and staff in this unit, and to his family. Those reading this blog right now, say a special prayer for his family, friends, and co-workers. And always remember how precious life is! Hug your love ones often, and tell them how much you love them. We never know what tomorrow holds.
Now to an update on our sweet princess, Emma! She got extubated last week (breathing tube got taken out), and she made it for 12 hours!!! She could have easily kept going but her left lung collapsed. Because of this, they reintubated her (put the breathing tube back in). They have been sprinting her, which is just a short expression for making her work on her own while on the ventilator. Which brings us to today, they are going to attempt to extubate her again! Please pray that this time it will stick, and she can come off of that silly ventilator!!!
She is developing quite the little personality. Case and point, the pictures below:
It makes it so fun now that she is "showing off" a lot of the time. We are getting to hold her, and hopefully, if we get this breathing tube out, we can take her around the unit. Almost EVERY nurse here has said they are going to hold her. So, we may wake up at night and wonder if one of them has taken her for a while, or if she has miraculously learned to walk! Haha!
We are still waiting on the right heart to come our way. Praying daily that it comes quickly, but they say it can take many more months. So keep praying that it comes our way, and that it is the right heart for her!
As always, God is good, all the time, and all the time, God is good! Thank you all for keeping us in your thoughts and prayers daily!
By the way, check out our new video to the right!
Daddy Scott
Prayer Requests:
1) That this time, when they take the breathing tube out (extubate), she will stay extubated!!!
2) That the perfect heart will come our way!
3) That we will stay infection free.
4) That we will keep growing.
5) Pray for the family, friends, and coworkers, of our nurse that passed-away in our unit.
6) And be sure to thank God for the blessings that we all have daily!
Sending prayers to you guys and of course the nurse and his family. Emma is just to beautiful.
ReplyDeleteWe continue to pray for all you ask of us. Thank you for sharing the video. She is precious. Love, Kendall and Darla
ReplyDeleteI will most definitely be praying for Emma tonight!
ReplyDeleteThanks for taking the time to update. I so enjoy seeing new pictures and even better the video. Emma is a DOLL!
ReplyDeletePraise the Lord for the short time off the vent. Praying that this time will be the one that works for good. Prayers continue daily for you guys and Emma. Praying that God will continue to bless you each day. Praying for Emma to stay healthy and continue to thrive as you wait for the next step in this journey.
Joy/Chandler, OK
So sorry for the loss of your nurse. I will be praying for him and his family. So sad.. I must say your daughter is beautiful! Love the little video and she was really enjoying that little song. :) Such a sweet girl! Will continue to pray for her and her heart donor. Will continue to pray that she can come off her breathing tube for good! I don't comment often but I always look for updates.
ReplyDeleteKeeping you guys in prayer and will say extra prayers for the nurse's family and friends. Praying for that heart that has been prepared for Emma. She has grown so much from the videos! You are right...we are not promised tomorrow. I'll kiss my kids extra in the morning. God bless you all.
ReplyDeleteAngie-Ada
Hello to Emma and her parents! I have never posted a comment to your blog but have been keeping up with it since Emma was born and we are praying for you! We live right outside Memphis, Tennessee but Dallas has a special place in our hearts. Our grandson, Tucker, was born in Arlington in September of 2007. When he was a day old, he turned blue and was rushed to Childrens where he was diagnosed with tetralogy of fallot and pulmonary atresia. He had two open heart surgeries within the first two weeks of his life, and spent about a week on ecmo - which was not fun at all. He went home when he was a little over a month old, had a third surgery right before his first birthday, and will have at least one more surgery to replace the current conduit - but he is doing great, and I have nothing but the utmost love and admiration for the team at Childrens! Your stay has been much longer than ours was, and you are incredibly strong people and Emma is blessed to have you for her parents! We will continue to pray - thank you for sharing Emm's journey.
ReplyDeleteKathy Boyd