As I lay here next to my sweet girl, I cannot believe that it has been a week since her life saving open heart surgery. Her postop recovery has been remarkably smooth. While there have been various hiccups along the way, including the massive chest bleed, Emma has recovered from this extensive surgery very well. I am once again in awe of our God's amazing Love for our family.
We still have a little ways to go to get Emma closer to baseline. She still has three chest tubes in that we are hoping to get two of those removed today. However, Emma has been off of oxygen since around four this morning and is doing well. This is a huge blessing. We have a ways to go on her eating, physical activity and sleeping, but I know that this will simply take time as her body is still healing from the major surgery.
We are hearing that Emma will go to the recovery floor today as long as there is a room available. It is unreal to us to think that just a week after the surgery we could be moving to the recovery step down floor. To be perfectly honest, we are nervous about this but excited at the same time.
The doctors had been discussing taking Emma back to the Cath Lab before we left to go back to Texas, but the new consensus that we're hearing is that they want us to come back in around 3 months for that procedure since Emma is doing well. Obviously, if for any reason they think they need to look at things or fix things before we go home then that is what we will do.
We are so very thankful to all of you who continue to pray for sweet girl. Your prayers give Scott and I peace during this crazy unpredictable medical journey. We are also extremely grateful to this medical team at Boston Children's who gave Emma a chance. They have been very understanding, helpful, and caring to our family. We are also thankful to her Dallas team who have checked on Emma and supported us as we worked to get Emma the help she needed. I would also be remiss if I did not thank our family, friends, and church family back home who have helped and continue to help in so many aspects of our lives. We are blessed and we serve a faithful God.
1. That Emma will begin eating more.
2. That Emma's body will not be accumulate fluid after her chest tubes have been removed.
3. That Emma can rest better at night.
4. That Emma will regain her strength so that she has the stamina to move in play.
5. That Emma's heart repair continues to do well to support her body.
As always, God is good! All the time! God is good!