Twas the Night Before Christmas

Well, it looks like we will be discharged from the hospital on Friday. We are excited and nervous all rolled up into one big ball of emotions.  Emma is doing well, but still has a ways to go before being back to baseline.  

One area that has really caused us issues during this trip is Emma's fear and anxiety.  Emma has never been afraid of nurses, doctors, other staff, and/or medical testing.  This go around, Emma has been off the charts anxious and angry. Emma yells and cries when anyone walks in her room, she throws things at people, and is chewing her fingers raw. 😞.  It breaks our hearts to see her this way.  We work hard to get smilies.  Due to this anxiety, Emma is controlling areas of her life that she has control over...eating and participating in activities.

We had a fairly quiet day today and enjoyed the less "assessment" times.  We had a lovely family (who we met here...the mom is originally from Sulphur Oklahoma) bring us a delicious Christmas Eve dinner and precious gifts. We are so thankful for these families kindness and caring hearts. Their precious little heart hero is super adorable. 

Enjoy our version of "'Twas the Night Before Christmas"

Twice the night before Christmas when all through the hospital room. Every nurse was stirring constantly in and out of her room.

Stockings weren't hung because there's no chimney there but we hope that St. Nicholas finds a way there.

Emma Is nestled all snug in her hospital bed with visions of Ativan and Motrin dancing in her head.

With Mom and her blanket and Dad in his cap...

Due to hospital rules, only one of us is settling down for a short winters nap.

When up on the monitor there arose such a clatter. 

I sprang from my chair bed to see what was the matter.

 Away to her bed I flew like a flash.  Watching her monitors in my mad dash.

The nurse was attempting to get some vitals on her.

So the blood pressure cuff had caused her to stir.

As we heard her scream as she drove her nurse out of sight.

Merry Christmas to all now get out of my room tonight.

 Thank you again for the prayers and support.  Merry Christmas from our family to yours.  Enjoy your day and remember those spending their holiday in the hospital and those taking care of them.