We will be talking with the Cath team to determine the best date to take Emma into the Cath Lab to look at her heart. As soon as I have more details on that I will update the blog.
As of right now, Emma and I are doing our best to get rest,talk to lots of doctors and other medical personnel, and stay entertained LOL.
We appreciate the prayers as we move forward to try to get Emma everything she needs.
Below is our Address while we are here:
Boston Children's hospital
sarah, I don't even know how I found this website, but it was right when Emma was born. I have followed silently from the beginning and have been so blessed by sweet Emma. Even more so, I have been blessed at your belief in the sanctity of life and the value that Emma's life has despite all of the challenges that she has faced. Our creator God made no mistakes in his intricate and creative forming of her precious frame and the way you and your hubby fight for her (and quality of life) is a great picture of how valued and treasured each life should be. It is a great witness for Christ--even in these storms (or this life storm for Emma) making HIS name great has been paramount here and I want to say keep it up.
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