Evening Update

Emma has had a good day overall.   We are dealing with a few issues right now that are preventing her from really making it over the "hump" so-to-speak.  Emma has run a fairly high temperature since coming back from surgery.  It got up 103 this evening.  It is back down to 101.6 which is better but not great.  We are giving her IV tylenol and toradol to try to control it.  They believe it is from inflammation from the surgery.

Good news is that we were able to take her breathing tube out today.  However, she is still not fully awake, so we are having to give her extra support in the form of Vapotherm (or a high flow nasal cannula).  She is on 15 liters at 100% oxygen right now.  Our goal is to try to get her to wake up more then start weaning her as she can tolerate.

Emma is in a lot of pain and is easily agitated.  We can't give her much for the pain because it will make her too sleepy and she will not breathe appropriately.  She flails her arms and feet around a lot.  We have to really watch her because she has so many lines, IVs, drainage tubes, etc. that we do not want her to pull any out on accident.

The plan right now is to keep checking her blood gases to make sure she is blowing off enough CO2, try to get her temp down, keep her as comfortable as possible, and hopefully restart her feeds in the morning.
We appreciate the continued prayers.  Emma has really had a pretty good day overall, but the next few days will be hard on her.   


God is good!  All the time!  God is Good!

Daddy and Emma after extubation!

Mommy and Emma