Update on Miss Emma

Miss Emma slept well throughout the night.  She did wake up a couple times wanting to be entertained ;), but all in all, she had a really good night.  We have been greeted with many big smiles today which is a good sign that she is feeling better.  She has also played more today with all her many toys that we brought with her.  It is really good to see her in such a good mood!  Often these babies will have migraine headaches following the Glenn but for Emma, she seems to be doing fine and if she is having them, they are not really bad which is an answered prayer.  

The doctors are also very pleased with where she is at clinically.  They said earlier, during rounds, that our plans would be pretty simple, ween on her oxygen support and continue to feed while also removing intracardiac and other IV lines when able. Also, chest tubes will be removed when able.  Today, we have weened down on her vapotherm support from 8 to 6 liters.  We have also continued her feeds and restarted some other medications she was on at home that we had not restarted yet.  Our plan for tomorrow is to remove the intracardiac lines which is a good thing because it means she will get to sit in her bouncy and have some fun!! :)  Also, they are planning on decreasing the flow of her oxygen again. All good things, so pray that we are able to do those things and any other things tomorrow that will continue to help with her recovery process.  

With all the uncertainties that we had yesterday, it made today, a day filled with much more fun and happy moments, very enjoyable.  As we continue down this road to recovery, we continue to ask you all to keep little miss Emma in your prayers.  Lord willing, she will continue to do well through this recovery phase, and we will be able to leave soon and, go home.

God is good, all the time.  And all the time, God is good!