Wednesday, March 26, 2014

One Month Away


It has been a little over a month since I updated our faithful blog followers.  Life has been a very good busy and yet mundane (in the best way).  Emma has been busy with her therapies and living life as a toddler.  She continues to improve and make strides in the right direction.  Emma continues to use her legs more and more.  We can actually see some little muscles forming. J  We got evaluated for a Kid Walk.  A Kid Walk will be a device that will support Emma’s upper body, but will allow her to walk and use her legs more.  It will be approximately 6-8 weeks before she receives the equipment, but we are anxiously waiting for the independence it will provide her.   She is continuing to progress with her fine motor skills.  She enjoys working puzzles, sorting pegs by color, coloring, and most of all, playing with Mrs. Potato Head.  Her new favorite activity is flash card identification.  If she is playing with Grampa then she throws them around, shuffles them up, and throws them again.  However, if she is playing with Mommy or the therapists she has to actually identify the correct object on the flash card.  She is getting very good at this activity and her recognition of the world around her continues to increase.  We have been enjoying the gorgeous weather and taking full advantage of the nice weather days to let Emma go wild and crazy in her “Power Wheels”.  She navigated around the entire block a few days ago.  It is so wonderful to watch her have the ability to get from point A to point B on her own.  So watch out Frisco…Miss Emma is taking her wheels out and about and she sometimes doesn’t stop for obstacles in her way…lol.


Medically, the best news we have to share is that Emma’s scoliosis has improved.  She had a great appointment.  Her therapy seems to be paying off.  Her core strength has improved which has in turn helped support her spine.  We are cautiously optimistic that her spine will continue to stable with therapy and that no other intervention will be needed (at least for awhile). 


Scott and I were able to get away for a few days in March to enjoy the beautiful mountains of Colorado and do a little snow skiing.  Scott and I enjoyed our time together and our time with the wonderful Abbott family.  Scott works for the Abbotts and we have always thought of them as extended family.  Wolf Creek was absolutely beautiful and the slopes were as fun as ever.  Big thanks to Gramma, Grampa, and Aunt Joni for watching our sweetie pie...and the ornery dog! 


We have been mentally preparing ourselves for her upcoming heart cath.  It has been two years since Emma has undergone any procedure that requires anesthesia, so we are slightly (ok, perhaps that is an understatement) nervous about how Emma will do.  The heart cath/eye surgery is scheduled for April 22nd.  The heart cath will give us all a chance to see exactly what is going on in Emma’s little heart.  Dr. Nugent will perform any intervention necessary to help Emma’s heart work more efficiently.  We do not have all of the details on her eye surgery at this point, but will meet with her ophthalmologist soon to discuss what needs to be done to improve her eyes.  Prayers are much appreciated as approach this next major step in Emma’s care. 


As always, thank you for caring about our sweet Princess Emma!  She is truly a blessing in our lives and we treasure every day we are blessed with her. 


As always, God is Good!  All the Time!  God is Good!





P.S.  Please pray for our heart buddies Kaleb and Evan.  Both of these cuties had major heart surgery in Boston a few weeks ago.