TWO WEEKS! TWO WEEKS! In less than two weeks, Emma will undergo her heart cath and eye surgery. After having to postpone her cath in April due to pneumonia, we have been extra cautious to limit her exposure to the outside world. Emma does not like being stuck inside 24/7. She drives her wheelchair to the door and tries her best to open it. It breaks our hearts to limit her so much, but we really have to keep her sickness free in order to have these procedures completed on June 11th.
June 11th: the day we have been anxiously preparing ourselves for. Emma will be put under anesthesia for the first time in over two years. While this may not seem like a major thing….the last time Emma was under anesthesia did not go well. Emma coded and we prepared ourselves to spend our last moments with our sweet baby girl. So, to say that we are a little nervous is an understatement. The plan is to do her eye surgery first to correct her strabismus, then she will undergo her heart cath to check her pressures and function, evaluate her pulmonary arteries, check for collaterals, and do any “tune-ups” deemed necessary by Dr. Nugent. The team will admit Emma the day before to give her fluids and we are expected to spend at least 24 hours post procedure in the hospital. The results from this cath will give us a better idea of what Emma's future heart plans look like.
Since our last post, Emma has celebrated Easter, stood up like a big girl all by herself, and kept us laughing at her antics. We can no longer eat anything at dinner without her wanting to try everything that's on our plate. We are waiting for the day that she does more than just lick the food, but actually eat some. She is really understanding and mimicking things that we do and it's fun to see her take part in the world around her.
We appreciate your prayers as we approach her coming procedures. We ask that you pray for successful procedures, an uneventful and smooth recovery, and an anxiety-free hospital stay for Sassy.
We promise to keep you updated here on the day of her procedure as we receive updates.
As always, God is good! All the time! God is good!