Wednesday, May 22, 2013

Long Overdue Update...You don't Want to Miss the Zoo Pics :)

Hey everyone!  Just thought I would give a little update as to what our sweet girl has been up to lately!

First, Emma recently went to the zoo and had a blast!  She got to see a ton of animals and even got to feed the giraffes.  I wasn’t able to go with Sarah and her mom to take Emma (I was extremely sad about this!!) but Sarah was able to send me some amazing pictures and a video of her feeding the giraffes.  So glad my big girl got to see all of this and have this amazing experience!  Lots of pictures, but I think they tell her experience so well.

Secondly, we thank God for the improvement we saw on Emma’s last Scottish Rite appointment.  Her lower lumbar scoliosis improved from 35 degrees to 24 degrees just in this short time she has been able to wear the brace.  Sarah and I consider this a huge victory because as one might imagine, this brace is no fun at all for Emma.  But, she has been amazing at tolerating a lot of hours in it.  We will continue to have her wear it and reevaluate in months to come.   Praise God!

Emma in her brace...We don't get many smiles when she has to wear her brace :(

Third, we give praise to God for her improvement in communication skills!  She has recently been doing and amazing job with communicating with Sarah, her therapists, and me with her song cards.  We give God the glory for all that He is doing in her life right now and to come!

Emma also has a new wheelchair.  While she is not maneuvering it herself yet, she is definitely enjoying some rides around the block.  Our hope is that this allows her more independence in her movement.  

Emma's cardiology appointment went well.  Her labs looked good and we are continuing to watch a collateral vein that has formed and is "stealing blood".  At some point, this will send Emma to the Cath Lab, but we are holding off for now because her oxygen levels are "good" for her and her heart function remains stable.

As always, God is good, all the time.  And all the time, God is good!
Scott (Daddy)