Welcome to Emma's blog! This blog will be used to update our family and friends on Emma's progress. We are so excited to have this outlet to let everyone know about Emma's journey. We appreciate so much your kind words and prayers. We truly have been blessed with such great friends, family, and others who have heard about Emma and have sent us encouraging words. We know that Emma and her little heart are in God's hands. Please continue to pray for Emma, her doctors, nurses, and Scott and I as we prepare ourselves for the next step in this journey. Prayer is POWERFUL!
Jeremiah 29:11
You are already a strong, loving, patient Mommy! Thank you for this page. I look forward to hearing how wonderful Miss Emma is doing! =)
ReplyDeleteFirst of all, congratulations on the upcoming arrival of your sweet baby girl! I can't wait to see pictures of this little miracle!
ReplyDeleteI was reading through your "about Emma" page. They can easily test for genetic abnormalities when Emma is here, and genetic abnormalities are pretty much neither here nor there at this point, as the big picture is the heart, so I'm glad you guys were strong in your convictions on whether or not to accept the amniocentesis procedure. My little boy has Trisomy 21 (Down syndrome), and I love him with all my heart and soul... so a genetic abnormality (if she even has one) will change NOTHING in regards to how much you will (and already) love this little girl!
It sounds like you guys are spending lots of time getting educated about her condition, and that's just awesome. There is strength and power in knowledge. Those first days in the NICU are the hardest and scariest. Feeling like you have a little bit of "know" on what the doctors are talking about and what they're going to be doing next sure makes you feel less out of control.
We were at OU Children's NICU for a month (and then their pediatric unit for another week), and we stayed in the RMH there. What a blessing it is to have a free place to stay while your baby is in the hospital. It's not home, for sure... there were days when my husband and I would just wake up and cry together because we weren't home and felt "stuck" there. But I don't know what we would have done without the RMH for that month away from home.
I've been praying for you guys ever since I heard about Emma's condition (your MIL keeps everybody informed on facebook), and I'm so glad I will get to keep up with what's going on on your site. God bless you guys!
Thinking of you and praying for you and precious Emma....
ReplyDeleteSuzy Buckles