Hey all!
Let me start off by saying thank you to everyone that
continually prays for Emma and us.
It still means so very much to us.
Also, a special thank you to all those out there that ask how Emma is
doing all the time and exhibit so much care for us! Now, I know it has been a long time since our last post when
Emma was in the hospital, so I will try my best to catch everyone up. Since Emma was in the hospital, a lot
of things have gone on in our lives.
So below I will list some events that have gone on since our discharge:
1)
Emma got plagued with another cold after she got
over RSV. So come to find out, our
pediatrician said that many kids that had gotten RSV and then caught another
cold, had a cold that strangely resembled RSV. Emma was lucky enough to be one of these few. She got all congested again and was
sneezing and coughing and we knew it was another cold. After taking her back to the
pediatrician... it was confirmed.
Our sweet little girl had caught yet another cold. She was not real happy and it did
resemble RSV again, but she recovered after about a week with us again treating
her very similarly to RSV.
2)
Emma had a followup appointment for her
scoliosis. Well like many things
in Emma's life, things have never just “come easy” or gone “as planned.” So when we went to Emma's scoliosis
appointment, we were reminded of this truth again. At the initial visit to assess her scoliosis, we were given
somewhat good news that her scoliosis was not bad enough to really do anything
and they would just watch it.
Well, after being a big girl for all the xrays needed to reevaluate her,
we were told that her scoliosis had in a way worsened. Now, the first xrays we evaluated her
on were taken when she was laying down.
So, there is a chance it may be unchanged or just slightly worse. But either way, the degree of curvature
of her scoliosis worsened. That's
when the conversation got interesting.
It got interesting because the doctors there had a difficult decision of
how aggressive they want to be with everything else that Emma has on her
plate. After some discussion, it
was decided for us to try a brace.
So my amazing wife took Emma up and got her brace cast made and now we
are fixing to go back and learn how to get her in it and make some minor
adjustments while we are there.
This appointment will be coming up on April 1st. So please pray that everything will go
well and she will tolerate this brace very well and that it will help her
scoliosis.
3)
Now to more recent news. Last night, Emma developed a
cough. She woke up throughout the
night and every time she woke up, we could hear more and more congestion
developing. We are pretty sure
Emma has yet another cold!!!! ( I know... right??? How many of these can she get from staying indoors pretty
much all the time!!??). So please
pray she gets over this soon.
*******Side not from Sarah: Took Emma to the doctor today and her lungs sound nasty. We are starting her on an oral steroid for 5 days and then will do an inhaled steroid. We are also being referred to a pulmonologist as Emma is dealing with symptoms like this every couple of weeks. It is miserable for her and none of us are getting much sleep.
Emma is still doing therapy
several times a week.
It is a slow process but we are seeing good development in some areas
and not so great development in others.
Not only is she physically developmentally behind, she is also
intelligent enough mentally to fight us during many of her therapy
sessions. She at times will choose
to just not do what we are asking her to do. Oh the joys of this age child and the temper/attitude that
comes with the age. :) She is
eating well, but still not liking to drink very much. Therefore, we of course still have the NG tube to give her
her liquids each day. She spends
several hours a day in her standing frame in attempts to strengthen her leg
muscles to try and prepare her to one day walk. All in all we are very proud of her even though she loves to
fight us during therapy sessions!! ;)
Well
I believe I will conclude this update here. As always, we thank everyone for all the thoughts and
prayers for our family! We will
try to update now more on a regular basis from now on! :)
Some
specific prayer requests:
◦ Pray
that Emma will get over her cold (or whatever this is) quickly.
◦ Pray
that Emma's scoliosis brace will be a success.
◦ Pray
that Emma will continue to progress well during therapies.
◦ Pray
that Emma's heart will continue to stay strong and function properly.
◦ Pray
for strength for our family as we ride this roller coaster ride called
Life.
As always, God is good all the time. And all the time, God is good!
Daddy Scott
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| Classic Emma Face |
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| Took My Grandma and Cousin Samantha to the Spring Tea at the Dallas Arboretum |
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| Sweet Smiles |
