Saturday, December 20, 2014

Update for 12/20/14

So Emma had a good day.  It seems to Sarah and I that each day she is getting stronger and is becoming more comfortable.  The big thing for today was the clamping of one of her chest tubes that has been draining the majority of fluid.  I caught her surgeon in the hall this morning (I am not sure if he was on his way to see us) but he walked with me all the way down to her room.  He listened to his fellow reading off the numbers of drainage but then looked at us and asked, how do you think she is.  It's amazing having someone with such a great amount of education and experience, willing to come down and take time out of his, no doubt hectic day, to see, number 1, how Emma is doing, and number 2, is willing to listen to our input.  What a blessing! We ended up making a plan to attempt to clamp the chest tube draining the most volume and see how she did.  In theory, if she does well with this and tolerates any fluid that accumulates, the chest tubes can come out.  So we are praying this is the case as these tubes cannot be comfortable for her to have to deal with everyday.  We have increased how much nutrition she is getting as well, and she seems to be tolerating it well.  All in all, it was a good day, filled with lots of smiles, laughs, naps, and some, I mean many, sassy moments.  As I type this, our sweet little girl is sleeping soundly in her bed. :) God is good, all the time.  And all the time, God is good!

Prayer Requests:
1) Pray her respiratory status stays stable with this chest tube clamped, and that we can get the chest tubes out soon.
2) Pray she continues to tolerate increases on her nutrition, and pray that she has a desire to start taking food by mouth again.
3) Pray that she is as comfortable as she can be with everything going on, not too stressed.
4) Continue to pray for all the people that have a role in her care.  They have helped her out in so many ways and we are so very thankful to God for each and every one of them.
5) Pray for Sarah and me, for the strength that we continue to need.

Thank you all for the thoughts and prayers!


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