God is in Control

They say this journey is like a roller coaster ride.  For the past few days we have been going uphill at a steady rate.  Emma was doing wonderful and the doctors all agreed that she was ready to come off of the intubation.  Emma did great for a few hours and then started to have some problems.  The noticed that part of her lung had collapsed and although her stats looked good, she was having to work way too much to breathe.  So, they decided to re-intubate her.  During this process some things went wrong.  I wish I could relay all of that to you, but I really do not have the time or energy.  

Basically, we almost lost her.  When the re-intubated her, they got the tube in the right place on the first try.  They left the room and everything was looking good.  Then about 2-5 min later, her sats started to drop.  This is when they knew that something was wrong.  They decided to examine the placement of the tube and after looking at that, decided to redo the tube.  Once they got it back in though, the journey wasn’t over.  She started dropping her sats again and then every time they got her sats looking good, they would try to turn her.  When they turned her everything would go crazy and all of her sats would fall.  When her sats fell, she went into bradycardia, or a very slow heart rate.  They gave her drugs to try to get her out of this.  This helped, but then she switched from bradycardia to tachycardia, or a very fast rate.  This was to the tune of around 240 plus beats per minute.  Scott and I felt helpless as we watched our little girl struggle to survive.  There were doctors and nurses (even a surgeon) here trying to figure out what was wrong.  They finally decided that this was due to a tube issue.  They would move her head and her sats would be fine.  Then they would move it back, and her sats would drop.  Eventually, they decided to suction her and pulled out a massive amount of mucus.  They came to the conclusion that the mucus was blocking the tube and not allowing oxygen to basically fill her lungs properly. After this, her sats evened out, and they were able to move her like they wanted to. 

She is stable right now and her sats and other stats are looking good.  This could possibly affect when her Norwood procedure will be.  We are not sure right now, but they are keeping a close eye on her.  When we find something out, we will post it on here.

Gramma (Sharon) sang “Our God is so big, so strong and so mighty there’s nothing our God cannot do” to her earlier today.  This is such a fitting song for what happened this evening.  I am convinced that the staff here had a major role in bringing our sweet little child back to a good place.  But I am even more convinced that our God had a much bigger role than anyone can imagine.  He was truly watching over her this evening!  God is good, all the time!  And all the time, God is good!  To Him be the glory!

Specific prayer requests:

1)    Pray for her this night.  That she continues to improve and gets back to where she was if not better before all of this happened.

2)     Pray for the upcoming surgery, the Norwood, and that the doctors will choose the appropriate time to perform this surgery.

3)     Pray for her brain function and that everything else formed properly in her brain.

4)     Pray for the nurses and doctors.  They truly did amazing work this very night!  Pray for God to be watching over them as they prepare for the days ahead.

5)     Pray for Sarah and me!  We had a very very very very hard night tonight.  They said this would be a roller coaster and indeed we rode something bigger than the Titan tonight!

Thank you for your continued prayers and support.  We truly have a God who hears and He heard them tonight!

Scott and Sarah (aka Daddy and Mommy)

Our little Princess resting after a very hard and eventful night.