Wednesday, October 6, 2010
Update on Miss Emma and Some Recent Pics
Emma is doing really well today. As many of you know, she had surgery yesterday that placed bands on her pulmonary arteries which decreased the amount of blood flow that was going to her lungs and increased the amount of blood flow going to her body. The surgery was a success and she has been benefiting from it. All the doctors today have remarked on how good she is doing. She is a little swollen from all the fluids that she has been getting, and so they gave her some Lasix which is a diuretic that will help take off some of the excess fluid. She has already lost some of the fluid.
They did a ultrasound of her head yesterday and found that she had agenesis of the corpus callosum. This means that the corpus callosum did not completely form or did not form at all. The neurology fellow told me that they would be coming by this afternoon to talk to us about what all that means for Emma. She said, however, that they would not be able to tell us much of anything at this point in time until they are able to do a full MRI of her brain and see if she has any other abnormalities. As of now though, she stated that that is all they found. If you remember before she was born, they thought that she had some enlargement of the ventricles in her brain. Upon the recent ultrasound, they did not see any enlargement in those ventricles which is good! She also told me that although this is very scary that some people do not have one and would never know they didn't have one. She said though that some people have problems with not having one. This is very scary and we are indeed wanting answers but understand that right now, her heart takes precedence.
The doctors came in today and said that they will probably be doing her next surgery, the Norwood procedure, on Monday or Tuesday of next week. So now we have a more definitive time frame for what is coming up next.
All in all, it has been an eventful couple of days but Emma is doing really really well! God is truly blessing us!
Some specific things to pray for:
1) Pray for her lung function to continue to improve and make her even more ready for the next surgery.
2) Pray for her brain as we await to find out more.
3) Pray for her heart and that it will continue to do well as we approach next Monday or Tuesday.
4) Pray for the nurses that are taking care of her each and everyday.
5) Pray for the doctors as they take care of her.
6) Pray for Sarah and I to have strength and peace in these coming weeks.
God is good, all the time! And all the time, God is good!